We are currently awaiting results of Nora’s most recent sleep study. Our hope is that her apnea has lessened or at the least, it has not become worse. We are experimenting with treatment options at this time since the most popular course of intervention has become a bit controversial.
Nora is taking singulair which is an asthma medication. It also can decrease inflammation in the nasal passageways and help with congestion that contributes to obstructive sleep apnea. We will soon find out if the medicine has been helping.
If it’s not helping, we will explore other options. Adenoid removal, tonsillectomy, cpap mask, Flonase steroid treatment…
It has come to my attention that cpap is not the best choice for toddlers with achondroplasia. It simply masks the underlying issue and can also impact the facial structure causing issues down the road. Since an infant and toddler are still growing, a mask worn nightly for 8-12 hours can put too much pressure on juvenile facial bones leading to an even more shallow mid-face, a more depressed nasal bridge and can cause issues with dental structure as well. All of these things can lead to increased breathing problems and more severe apnea. Nora’s mid face hypoplasia (underdeveloped maxillary, nasal and jaw area) already puts her at risk for increased apnea and a cpap may be more harmful than helpful in the long run.
In extreme cases of midface hypoplasia and apnea, surgery is recommended. This surgery can change the facial structure and allow for a more open maxillary and nasal area.
Many children use the interventions I have discussed here. However, some of the treatments are not what is best for Nora at this time. Together, with our team of specialists, we are trying to figure out what can give Nora the best and healthiest sleep.
So, for now, we wait. We worry. We wait some more. We enjoy the smiles and giggles. We are thankful for a happy little girl. We snuggle and watch 💕💕💕